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Our Mission
Our mission is to empower, connect and support caregivers and individuals with Prader-Willi Syndrome who are Black, Indigenous and People of Color through community-driven research, education, and advocacy. By uniting and uplifting diverse voices and experiences, we aim to improve health outcomes and the overall quality of life for all.
Join Us In Our Vision
We envision a future where our loved ones regardless of their skin color, their financial status or/and their background live limitless lives. We aim to build understanding and empathy for people living with PWS by creating supportive and inclusive communities. We see a future where people of all shades are able to live their best healthy lives.
Colors of Hope Organizers: Karine, Dini, Gennelle, Charles and Sarah (not pictured yet).
Upcoming Events
February Community Resource EventThu 05 FebVirtual Event
Creating Equity for PWS: the gaps and path forwardTue 27 Janhttps://us02web.zoom.us/webinar/register/WN
Gallery
Read our Report on Underserved People in the Prader-Willi Community
In order to better understand the needs of families of color affected by Prader-Willi Syndrome, the Colors of Hope group held a series of Listening Sessions and surveys in 2025. Seeing a gap in representation, we also looked at relevant data. You can read our 2026 Listening Session Report that elevates voices of BIPOC caregivers, identifies gaps in care and representation, and generates recommendations for action. The goal of this report is to create a shared understanding of the challenges and opportunities ahead. The pdf is available below:
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