In order to better understand the needs of families of color affected by Prader-Willi Syndrome, the Colors of Hope group held a series of Listening Sessions and surveys in 2025. Seeing a gap in representation, we also looked at relevant data. You can read our 2026 Listening Session Report that elevates voices of BIPOC caregivers, identifies gaps in care and representation, and generates recommendations for action. The goal of this report is to create a shared understanding of the challenges and opportunities ahead. The pdf is available below: